The Society for Participatory Medicine is devoted to promoting the concept of participatory medicine by and among patients, caregivers and their medical teams and to promote clinical transparency among patients and their physicians through the exchange of information, via conferences, as well through the distribution of correspondence and other written materials.
The Society aims to "advance the understanding of physicians and other professionals in the importance of well-informed, empowered and engaged patients making informed decisions about their care and treatment." Although it is an American resource, it has a valuable message which transcends borders and can affect patients regardless of their location.
Here are some interesting aspects of the site:
The Journal of Participatory Medicine
The Journal of Participatory Medicine: Patient Narratives"
e-Patients.net